Mucolipidosis IV Foundation

Welcome to the Mucolipidosis IV Foundation website at ml4.org. We hope you find our web design easy to use and the information helpful.

• There is no medical treatment available at the present time.
• Intensive physical therapy for spasticity and ataxia is highly recommended for acquisition of skills, and prevention of secondary complications.
• Some individuals way develop the ability to sit independently or crawl.  Many have learned to walk with the aid of ankle-foot orthotics (AFO’s) and gait trainers.
• Occupational, speech, and vision therapies are also highly recommended to improve life skills.
• Spoken language is limited to a few or no words.  Many individuals use some sign language to communicate.
• Some children have had great success with the use of “auditory scanning” to make choices.
• Pureed foods and thickened liquids are necessary for many individuals, to prevent choking and aspirating while eating.
• Iron supplements, as needed, are important to prevent anemia.