MUCOLIPIDOSIS IV FOUNDATION - RESOURCES

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We hope to provide you with links to all web sites with information regarding ML4 here. Information about new links is welcome.

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Medical Resources 
www.genetests.org
Jewish Genetic Disease Consortium
Genetics of Inherited Diseases of the Nervous System
Research Study at NIH
Developmental and Metabolic Neurology at NIH
Yoav Ben-Yoseph, Research
Clinical Synopsis - National Center for Biotechnology Information
American Society for NeuroChemistry, Basic Neurochemistry
World Neurochemical Societies
The Repository for Mutant Human Cell Strains - Cell Bank - holdings of skin fibroblast cultures
Cell Line Description
Rare Genetic Diseases In Children - Medical Resources Directory
ML4 Medical Information

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Activity Resources 
Rare Genetic Diseases In Children - Educational Resources Directory
Rare Genetic Diseases In Children - Disabilities Resources Directory
Assistive Devices-MOVE
Assistive Devices-Rifton
Mayatek

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Parent Resources 
The Center for Discovery can be a resource for families with multiply-disabled and medically fragile children and adults
Rare Genetic Diseases In Children - Financial Resources Directory
The National Respite Locator Service

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Support Groups 
The Genetic Disease Mailing List
The Alliance of Genetic Support Groups
Genetic Conditions/ Rare Conditions Support Groups & Information
National Foundation for Jewish Genetic Diseases, Inc.
ML4 Connections

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